She did not simply visit this world, she made a difference. – Bart Holaday
I leave this life grateful and fulfilled. I am at peace; I am not afraid. – Lynn Buckingham Holaday
Tag Archives: ALS
In previous postings, I’ve mentioned a dear friend who has Lou Gehrig’s disease (amyotrophic lateral sclerosis, or ALS). Jan, a very close friend of Lynn, wrote:
at the moment I cannot get beyond my sorrow.
That sums up what Lynn’s friends are now feeling. We don’t want to let go. To lose someone who has gifted us with so much and to think of never hearing her laughter, seeing her lovely face, reading her extraordinary prose, to never see Lynn again – in this life – causes such intense pain to well up in our hearts.
God bless you, Lynn.
God keep you in his arms – forever.
And thank you for the Gift of Yourself
which you have always given so freely and lovingly.
Lynn wrote a short note to friends, explaining that she wanted us to know how much her friends have meant to her.
While I still am able, I want to thank you for the truly wonderful outpouring of love and concern I have received since I let people know of my diagnosis of ALS.
I echo Jan’s exclamation: Damn Death!
Excerpt from Lynn’s moving letter:
My days are dwindling down to a precious few which is why I’m writing to say good-bye and to wish you all abundant good health, happy lives and lots of laughter. Your many good wishes have brought much light into my life, and I am eternally grateful.
Love to you each and everyone,
Practicing Catholics perceived electrical shocks while viewing an image of the Virgin Mary (above right) as less painful than shocks delivered while looking at a non-religious picture (above left). In contrast, professed atheists and agnostics derived no pain relief from viewing the same religious image while getting uncomfortably zapped on the hand.
The research was done by Katja Wiech of the University of Oxford in England. Bruce Bower wrote an article describing the research in the October 11th issue of Science News.
Pain and Religion
Of course, being human, we all suffer from pain during our lifetimes – different degrees of pain. Some pain can be alleviated; some pain has no cure.
Barbara Brown Taylor provided some insights about pain:
“If you flee from pain and failure, then you run into them everywhere you go. If you can find some way to open to them instead, then they may bring their hands from behind their backs and lay flowers on your bed.”
“Job is one of pain’s most eloquent poets.”
“At its worst, [pain] can erase most of what you knew about yourself. People who live with chronic pain usually know more about this than those who may reasonably look forward to feeling better soon. To live with pain on a daily basis is to be involved in a high-maintenance relationship. To make peace with the pain can require as much energy as fighting it. Things you once did without thinking—rising, dressing, eating, walking—now take concerted effort, if not paid help. Who is this person who cannot do such simple things? Who is this person who cannot help anyone, even herself?”
“Whatever else it does, pain offers an experience of being human that is as elemental as birth, orgasm, love and death. Because it is so real, pain is an available antidote to unreality—not the medicine you would have chosen, perhaps, but an effective one all the same.”
“Plato once said that pain restores order to the soul.”
A dear friend has an incurable disease and will be experiencing more and more pain as her disease progresses. This journey, one which she would have never chosen, has plumbed the depths of her optimism, her rationality, and her spirituality – and she retains this optimism, rationality and spirituality. She is providing words of wisdom and comfort and insights to her friends as she continues on this road – a journey with a certain conclusion. Lou Gehrig’s Disease will eventually ravage her body and yet her brilliant mind remains insightful, creative, curious, and compassionate (she has always and will always have these qualities).
It is difficult for me to imagine my vibrant friend not able to do the physical things one takes for granted. It is NOT difficult to realize she will still be the intelligent, lovely person I have always known – albeit with a body unable to accept commands. This is a horrible disease.
ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s Disease, is an incurable fatal neuromuscular disease characterized by progressive muscle weakness, resulting in paralysis. The disease attacks nerve cells in the brain and spinal cord. Motor neurons, which control the movement of voluntary muscles, deteriorate and eventually die. When the motor neurons die, the brain can no longer initiate and control muscle movement. Because muscles no longer receive the messages they need in order to function, they gradually weaken and deteriorate.
Approximately 14 cases of ALS are diagnosed each day nationwide. Most of those who develop the disease are between 40 and 70 years of age. The average expected survival time for those suffering from ALS is three to five years. At any given time, approximately 30,000 people in the United States are living with the disease.
The cause of ALS remains unclear, and no cure exists. While there is no drug to prevent or cure the disease, recent breakthroughs have resulted in Rilutek, a drug that modestly slows the progression of ALS.
Praying daily for my friend.